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PHTS Patient Registry UK

Department of Medical Genetics

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  • What is PHTS?
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  • Patient Registry
    • How we use your data
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  • Home
  • What is PHTS?
    • Useful Links
  • Patient Registry
    • How we use your data
  • Contact Us/Take part in the Study
Illustration of a human figure with ourstretched arms unwinding from a double helix
Blue box with the text "PTEN RESEARCH" in capital letter inside it.

PTEN Hamartoma Tumour Syndrome (PHTS) Patient Registry

In April 2019 Cambridge University secured funding from the PTEN Research Foundation to create the UK’s first PTEN patient registry alongside the University of Edinburgh and University Hospitals Southampton. By collecting clinical data the PHTS registry aims to;

  • Improve understanding of PHTS
  • Improve patient outcomes, treatment and symptom management for PHTS
  • Develop multidisciplinary approaches to predict PHTS complications for people
  • Provide evidence to support treatment guidelines

About PHTS

Find out more about PTEN Hamartoma Tumour Syndrome (PHTS)

PHTS Patient Registry

What is the Patient Registry?

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Get in touch with the study team

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