PTEN Hamartoma Tumour Syndrome (PHTS) Patient Registry

In April 2019 Cambridge University secured funding from the PTEN Research Foundation to create the UK’s first PTEN patient registry alongside the University of Edinburgh and University Hospitals Southampton. By collecting clinical data the PHTS registry aims to;

• Improve understanding of PHTS
• Improve patient outcomes, treatment and symptom management for PHTS
• Develop multidisciplinary approaches to predict PHTS complications for people
• Provide evidence to support treatment guidelines